Coughing and Schooling

Over the last 10 years or so I have been learning things about the private primary prep school to which I went up until the age when I took the 11+ examination (which in England determined whether you went to a grammar school or a secondary modern school). The streaming system was very academically and socially divisive. 

I assume when it was thought up the idea was to stream academically minded people towards academia and university and 'the rest' to more practical education. I passed the 11+ with flying colours and was awarded the first choice of school which my parents had specified when I took the exam. 

That was Quarry Bank Grammar School in Liverpool. It was the home of many who became illustrious people. John Lennon was a few classes ahead of me. He was eccentric even at school. He also started a group at school called The Quarrymen.  However everything there was aimed at getting those who were Oxford or Cambridge material to one of those Universities.

Unfortunately at the age of around 14/15 I developed a disease called bronchiectasis.

It is a disease which is often fatal. It is often also associated with poverty and lifestyle. It is very common in the Pacific Islands. When I lived in New Zealand the niece of the then Governor General of New Zealand succumbed. She was the same age as I was when I succumbed. The difference was that she was not expected to live. She became a campaigner for better health education and lifestyle for Pacific Islanders in particular.  I believe that she died shortly after I left New Zealand.

My bronchiectasis was caused by the smogs (cloyingly thick smoke laden freezing fogs) common in cities in the UK in the '40s and '50s before the Clean Air Acts banned the use of coal in domestic fires. It had consumed the lower lobe of my right lung.

The result was that I had a wracking cough particularly during my last year at school. It was rather disruptive in class and a number of the teachers just kicked me out of the class. I joined the Natural History Society and the Beekeeping Society so that instead of just standing outside the classroom as I was bidden I went and looked after animals and bees. 

I have had a great love and respect for bees ever since. I have had a rather jaundiced opinion of teachers ever since. I left school as soon as I was legally able to. 

So far as the disease was concerned I was one of the fortunate ones. I had an operation to remove much of my right lung and I have coped admirably in the 64 years since the operation (by the surgeon Mr Leslie Temple). Oddly I can recall his name and many of the nurses I worked with in the Hospital after I left school. It's a shame I have difficulty remembering my own name these days. 

The real point of this post, though, is that teachers and 'the system' thought it was quite acceptable to deny an equal education to anyone if they felt like it. The idea of simply kicking people out of a classroom now because of a disability is, I hope, completely anathema.

Bronchiectasis

Not very long ago a doctor asked me what the scar on my back was from. The answer was a the removal of half of my right lung when I was 16. I had suffered for several years from bronchiectasis. It's a very debilitating disease allowed to get a hold, in my case, by cross country running and playing football all winter when I had bronchitis. I went to a school where a note from your parents did not excuse you from any school physical activities.

The doctor seemed quite perplexed and made a rather odd remark but I didn't think anything more about it.  Until, that is, a few months ago when I was watching Seven Sharp a TVNZ programme akin to the UK's One Show when it showed this footage of Esther-Jordan Muriwai: a name which, until that moment, had meant nothing to me.

Today I was about to write my Thankful Thursday post and mention my bronchiectasis.  I decided to see how Esther-Jordan was.  I was taken aback to discover that she died yesterday - my birthday.  The  anniversary of our son, Andy's death and of the father of one of my closest friends.   

The TVNZ news article reads:

Inspiring young woman Esther Jordan Muriwai - Source: Te Karere

Young Māori woman’s legacy lives on

For 14 years Esther Jordan Muriwai was in and out of hospital battling a respiratory disease called bronchiectasis. Last night her battle came to a heart-rending end, she was 24. Having founded the Bronchiectasis Foundation and the Northland Bronchiectasis Support Group, Esther dreamed to help the few in NZ who are suffering from the same illness that took her life.

Until that programme made me look more closely at the disease I had lived for over 50 years in blissful ignorance of how near I had come to being in a similar situation.  I had worked in the hospital but until I saw that programme I had only come across one other person with the disease and he was operated on on the same day as I was.  He died a few days later.

I, on the other hand, have never had the slightest sign of any respiratory problems since I was discharged from hospital with a clean bill of health all those years ago.

Since the original programme I have become aware, however, of the extent of the disease in New Zealand and the Pacific Islands' communities.  I have also developed an admiration for the positive attitude and hard work that Esther-Jordan has put into bronchiectasis awareness and support to sufferers and their families.

I shall continue with my Thankful Thursday post separately but I shall also be thankful for the life and work and positive attitude that Esther-Jordan has brought to this world.